Urgent funding is needed to develop additional trials that could save the life of our daughter Sadie and the lives of so many other children. Please help us raise as much as possible before Sadie turns 1 year old, the age at which most children begin to develop symptoms.  The funds raised will be used in two ways:

1. Money will be given to the Cure Sanfilippo Foundation to help fund additional research and clinical trials. For more information please visit:

2. The money will also be used for Sadie's medical bills and traveling to doctors in different states.




Donations can also be mailed by check to:
1204 Louise Lane
Albemarle, NC 28001